Peaks and Valleys

As an eternal optimst, I rarely dwell on the negative aspects of the day to day. And fortunately, the last few days with Ellis at home have been as close to “normal” as we’ve experienced. So I haven’t put as much thought into updating everyone on how he’s doing. It’s not fun to dwell about your child going through chemo.

Still, there are a lot of daily challenge Ellis faces, and a lot for us to help him navigate. One of the hardest parts of our day is the amount of medication Ellis has to take. And while I haven’t sampled it myself, the reviews are in and they’re not good. Ranging from “I hate that” to “disgusting.” 4-5 syringes in the morning, 2 more throughout the day, and 4 in the evening. Poor guy. He is getting better at it though.

He had a tough bout with C Diff (essentially, a very unenjoyable stomach bug) that cut our original home stay short. This was definitely a low point for Ellis as he was in a lot of discomfort, and for Mom & Dad as we didn’t get much sleep. Fingers crossed though, it seems like we are through the worst of it.

It’s hard to explain how good “normal” can feel after the month we’ve been through. We are buckling up for round two of chemo tomorrow, and praying for more continued improvement and minimal side effects.

We continue to be grateful for all the support we have recieved. For more updates on Ellis, visit https://www.zashcraft.com/ellis

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